Transforming data into action for rare and congenital conditions

Sarah and Steven celebrate 10 years of the National Congenital Conditions and Rare Disease Registration Service (NCARDRS).

This year the National Congenital Conditions and Rare Disease Registration Service (NCARDRS), part of NHS England’s the National Disease Registration Service (NDRS), celebrates 10 years of advancing understanding and care for people affected by congenital and rare conditions. Reflecting on the past decade, we have come so far in using data to make a tangible difference and achieved so much, yet there remains much more still to do.

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